NIH Rare Diseases Clinical Research Network
National Institutes of Health - April 19, 2016
Working with AAMDS Foundation International, a foundation that helps patients, who have a rare blood disease, I was privileged to work on the team to create the very first web site for the NIH Rare Diseases Clinical Research Network.
The purpose of this network is to educate the public on the research, clinical studies and other important information about numerous rare diseases of which bone marrow failure diseases are one.